One of the things I would like to get back in the habit of in the new year is to contribute more again to this blog, which I started in 2009 with help from John Lynn at Healthcarescene.com. Part of the challenge of keeping an ongoing stream of thoughts here has been both my busy life as an active provider of subspecialty healthcare, the growth of my practice as a business, and most importantly the emergence of new ideas for consideration and writing.
Luckily, I have been able to find some novel sources recently, and so I am going to try to reach out to these resources more often to gain insight and ideas for new and interesting topics on which to blog.
One of these sources recently highlighted an interview with Lygeia Ricciardi, the ONC Director of Consumer eHealth. The ONC is under the purview of the Department of Health and Human Services. Ms. Ricciardi recently attended the FCC’s mHealth Innovation Expo in Washington, DC, on 12/6/13. She highlighted work on policies for mobile health apps and cited a goal of helping to reach everyday people and empower them to improve their ability to participate in their own healthcare.
M-health apps are currently under voluntary control in whether or not their developers follow ONC guideines for design. Such apps may help patients, who are now often referred to as “consumers”, in such tasks as shopping for good-quality healthy food and reading nutrition labels. In 2014, the ONC Office of Consumer e-Health plans to launch a website for helping patients find where to gain access to their own health data online. Such information can include medication lists, laboratory reports, and other records. Ms. Ricciardi likens this initiative to the “Blue Button” project that targets making medical data available to veterans at VA hospitals.
Access remains a key concern since once patient data is downloaded through a third-party app, such data will then by definition not be protected under HIPAA. A third-party app developer will automatically gain access to this data during the process.
Ms. Ricciardi also cited possible other uses for mHealth apps, including helping people make participating in the healthcare both fun and interactive. Examples were provided of apps that can help patients play games to compete against each other to see who can follow healthy habits better, e.g. who can exercise more, check blood pressure more, lose more weight, and check their blood sugars more often (for diabetic patients). She further stated that consumers are being brought into the ONC process for m-health app policy development on a regular basis to ensure that there is some public guidance for what is and is not desired. She cited the new paradigm, often quoted by now, that a cultural shift is changing towards more shared decision making in healthcare and giving more power to patients to participate actively in their healthcare rather than being passive bodies directed by healthcare professionals.
She encouraged individual patients/consumers to get more actively involved in their own healthcare. According to Ms. Ricciardi, although the current medical environment is still mostly of two separate worlds, with little sharing of medical information between medical practitioners and patients, the coming world of m-health apps promises much potential for changing this.